We were told a few days ago that Duane had a really bad day at the day program . They said he cried and beat himself for 4 hours! They know he does this when he is in pain. It took a behavioral specialist to tell them this after hours of study when that is what I have been saying for years. By the way he keeps breaking his nose doing this! He is probably going to have to have surgery to reset it. His Dr. thinks it is causing him breathing problems. They gave him an IB with no results but refused to call anyone to come get him or give him his Vicodin that they are not allowed to give him even with a Drs. order. They should have sent him home. Yesterday he hit the bus driver 3 times and she went to the door and told Dana she had to come get him off the bus and then he hit her and he has never hit her before. She said he came home without his little fish he clings onto (so it could have been a tantrum but) she also said he was really gassy and he kept putting his hand on his head so he may have had severe gas pains (I get them and they are worse than labor pains) and a headache. I have fought with Drs. for 21 years because he couldn't talk so how did I KNOW he was in pain it could just be his autism and I needed to get used to it and then I was told he needed to learn how to control himself even if he was in pain. What the heck is he supposed to do? HELLO He can't talk. I get really upset that people don't listen to the parents more often. We are the one that have watched his behavior for years day and night good and bad days. I just thank God everyday for his Dr. that felt his pain and gave him his first Vicodin and believes us that something is wrong and sends him to specialist to check it out. I am very thankful that Dana is a nurse and found out that one of the main medications Duane was on listed stomach distress as the very first side affect, He had been on it for years. He is MUCH calmer now that he is off of it, she is trying to get him off his physic atrophic drugs but if these outbursts increase he may really need them. It is just a trial and error stage right now. He is almost off of them but they MAY have to increase them we just have to wait and see how he does.
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